Sunday, July 12, 2015

June 2015 - Update

These past few days, have been very good, amazing the difference a neurological flare up, a medication change and a continuation of those intravenous infusions and now my mood is like I haven't felt in decades, feeling very light and happy!
My pain level is consistent again more even day to day, so it's a bit more manageable.
It was around two months ago, I woke up and sat on the edge of my bed and I started to feel real strange, like I was suddenly being electrocuted with a mild electrical current travelling slowly through my whole body from my toes and then all the way to my head. As the current it was travelling through me, I decided I better call 911. I was able to dial my cell phone and at the same time when I reached dispatch the electrical feeling had now reached my head and then it felt like many mild explosions erupting simultaneously and I think I blacked out for a few seconds or maybe minutes. The next thing I remember, I was awkwardly crawling on the floor towards the door. Somehow, I thought about the Ambulance drivers not being able to get into the house or my room. I remember feeling like all my muscles had become limp and thinking this felt like the sensation of a neurological eruption had just occurred inside my head, my brain. This ended up happening twice in less than a month and both events landed me a few days in the hospital. During my second visit, my assigned hospital doctor made the decision to reduce my daily Lyrica dose from 600mg to 300mg. That is a fifty percent lower dose, I remember thinking this is a crazy decision and how will this effect not only my mood but my pain as well. I thought I most likely will begin feeling fifty percent more pain after a few days.
I almost forgot to mention the divorce as well, it was a bit earlier on, like November 2013 but now the emotional wound has healed and I'm ready to move on. 
I'm following two new paths for my life, I'm spending time on making music and writing, actually making it a priority in my life instead of treating it like a bonus, a reward you get when all your other stuff is done. Of course the other stuff, never gets done because there used to be a never ending "Honey Do!" list with mundane tasks which now have become her life's path.
More than three weeks have passed and I'm still waiting for the results of my latest brain MRI. Either way I will likely be unhappy with the result but nonetheless I did follow-up with my doctor and I was told they had not received the results, now what?