Thursday, August 15, 2013

My Invisible Disease - Part 2


Well, my family doctor had referred me to a Fibromyalgia Specialist in Sunnybrook Hospital in Toronto, Canada. I must add it was an eighteen month process to be able to see him. I waited six months for my appointment and then another 12 months before the actual appointment day. I see him now every six months to monitor my condition. He has diagnosed me with Fibromyalgia and he is suspicious of it possibly being Limes disease. I have been tested three previous times for Limes and all tests were negative. In addition, I have had two complete Immunology screenings done in McMaster Hospital with everything coming back as negative results. This has definitely been an adventure and I get the feeling that it's hardly over.
In the meantime, day to day, I struggle with most parts of the day but I do my best. Lately, I find myself sleeping a lot, the chronic fatigue component of the Fibro has been
very prominent. Despite all the sleep, I never feel fully rested. I know this is a hard thing for regular people to accept because it is illogical to perceive this is even possible. However, this is pretty common with most Fibro sufferers, as I am learning. I am also learning that each Fibro patient has their own unique distinctions. One patient may have prominent depression symptoms while another's distinct symptom may be chronic pain. No matter how bad things get it's amazing for me to imagine there is someone dealing with something worse than myself, but it's true.
My motto that help's me get through each day is "Take a deep breath and do the best you can".

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